Posts
No real improvement. We're trying a liquid diet administered with a dropper. Hopefully it'll ease the gagging reflex he's developed. But the seizures are everywhere... We've stopped HBOT for the week. The extra oxygen can give him more seizures, so maybe that'll take some pressure off his brain.
We have the option of hospitalization/food tube, but we don't want to go down that route unless it's totally necessary.
The risk that he could pick something up there is too great. His kidneys are doing better, though. We just got the tests back. His creatinine level went down another point.
-----------------------------------
Well, it's evening now. Gosia got some food into Calvin while I was at work using the "dropper method". His stomach's just so small... if he has too much in it, he burps up what won't fit. We're going to try and grow his stomach. Little by little. He can fit in about 50% of what he "should be" eating.
2 comments:
I don't know you personally but your words have touched my heart. I will say a prayer for your little Calvin and hope that things ease up for you and your precious little family soon..
Hi everyone! It's so good to hear from you and SEE you all! Calvin looks like he's enjoying the workout on his incline board! Eli and Rhiannon are so big and they look so happy,I love Eli's school uniform... HOW HANDSOME!
I send you all my love and prayers Calvin gets through his eating setbacks and his stomach grows so he fill his belly!
Danny just turned 2 last fri(9th) and is just so funny and really smart.He speaks sentences around his older cousins! and counts to 6 in spanish. Of coarse your kids are probably speaking at least 3 languages by now! I miss you guys and can't wait to hear from you again!
Love always
Jennifer!! :)
Post a Comment