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Plus, his wife, the hospital's pediatric neurologist (who came down to see Gosia during the visit!) suggested we give him a low dose of anticonvulsants at night (link to wikipedia)... Calvin got half the dose , but tonight we must try the whole pill of Phenobarbital (link to wikipedia). He's a little out of it today, but hopefully most of the side effects will happen at night and he'll just sleep a little sounder.
His liquid diet consists of Pediasure complete, by the way. For his age, he should have 1000ml a day of the stuff and he can live off it.
For his body weight, 7.2 kgs., he should be intaking 700ml, and his stomach can currently handle about 400-500ml. So, we'll be very slowly trying to grow his stomach so he can get more in.
We talk to Calvin's doctor, Doctor Richard, who cared for him all the while he was in the ICU, regularly-- he gives us a lot of help and support so we can feel less alone in all this. The doctors and nurses have been very supportive to Calvin and us.
Here are a few pictures I got of him today, playing with his Eli-made rattle.
More soon...
1 comment:
Dear Sean and Gosia,
Yesterday, I mentioned you to Toby (I remember you from years ago at IDD events). At the time you were an energetic, smiling high school kid going to Cathedral. I told Toby I thought of you because my son took an exam at Cathedral last weekend. Toby sent the link to your family blog. To say I was moved by you and Gosia is putting it mildly. Seeing your life as it is today is sobering and inspiring. Because I remember a free-spirited boy and in just a few years, you are now a responsible, dedicated father who has gone to great lengths for the sake of his family. Your children are beautiful. But more beautiful are the parents you and Gosia have become. I don’t think anyone, regardless of their age, is ready for the selfless role of being a parent. Usually it’s more than we ever expect. That responsibility coupled with serious health problems would level the strongest of wills. Yet, you and Gosia seem to do it with love, grace, humor, compassion and a sense of adventure. I’m sure you don’t see it that way and feel you’re doing what you have to. Your children are blessed to have you both as their parents. I pray that Calvin begins to thrive soon. Much love to all.
Theresa T.
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