Sunday 18 May 2008

Sunday, May 18th


This afternoon we got some teas and went to the park where Calvin played on the swings. His balance is improving and it helps him with his holding on.

A few pictures of him out at the garden playing with a fern. He's in Rhiannon's play stroller... I have a movie of her pushing him in it that I'll put up Wednesday.

He's been semi-diagnosed (he won't get an official diagnosis until after 3) with Moderate to Severe Quadriplegic Cerebral Palsy...

The movie at the bottom is of him chewing, which is a new step for him. Gosia's feeding him rice crackers and peanut butter.

His seizures continue, but it may be because of the teething. When he went on the anti-convulsants, it was because he was teething and wasn't eating due to seizures. Hopefully, after the teething is over, we can begin to wean him off the meds, which can become addictive and leave permanent side effects. He's on a new one now, but we think it may be spacing him out and effecting his personality. We can't be sure until the teething stops, so we have to wait and see.

Even with all his steps, he's still terribly far behind. His vision has definitely improved. His strength is increasing and he has good muscle tone. His sounds are improving, too. More complex... He has quite good therapy here, now three times a week over at the hospital, and they're happy that he keeps improving.

Hopefully by the time he's three he'll no longer be Quadriplegic, but we have to be patient.

Eli and Rhiannon are doing well... At the park, Eli made some friends and engaged them in finding dry cicada skins... he'd found almost a dozen by the time it was time to go, so he was pretty happy about that.

That's about it. Enjoy the movie!



1 comment:

Toby O'B said...

And how did you prepare the dried cicada skins?

I mean, they are considered a delicacy over there, aren't they?

LOL

As soon as I saw that first picture of Calvin in the garden, my grandfather's voice came roaring back in my head:

"Get out of those ferns!"

Those were scary times up at the Lake....

Thanks as always for the updates!